RSS

Tag Archives: personal journal

Reblog: Learning the lessons

I’d like to introduce you to another friend of mine who has just started a blog.
She had dipped her toes in the waters of WordPress before, then somehow mislaid her login details and lost all the original posts, but now she’s back and writing better than ever.

Hop over and say hello, so you too can learn some lessons of life.

The Lessons

I quit school when I was 17 and spent two years trying to get the GED. I failed the math and writing multiple times, and after a while I quit again. I went back to try a final time, at which point my teacher told me I could do a high school completion course. After a year and a half, I graduated as a member of the Nation Adult Education Honor Society.
Lesson one: Believe in yourself.

My son attends a magnificent school with wonderful teachers. I just found out today that he is being bullied, and he is afraid to tell the bus driver. The boys who are picking on him used to be his friends, and now that my son turned over a new leaf, they don’t like him. I asked him what he plans to do, almost afraid that he would say that he would go back to…

View original post 406 more words

 
2 Comments

Posted by on February 3, 2017 in Blogging, Personal anecdote

 

Tags: , ,

Reblog: Time heals all wounds

Lanthie had a tough Christmas, but she’s determined to make it a good New Year and it’d be great if you could click over to her blog and show her some support. Thanks.

Lump, what lump?

Found myself very dehydrated again on Wedesday last week.  Went to the oncology centre for my second last radiation treatment.  My last treatment was not quite a celebration.  On the way home I said to my boyfriend I think I need to be in hospital.  He was not thrilled by the idea but knew I was right.

I was a wreck.  I could not stand for more than a minute at a time.   I was pale and had no energy.  Still not being able to eat or drink anything.  Hadn’t done either in days as nothing stays down.  Something sets off a gag reflex and I just bring anything up, filled with mucous.

So I was admitted on Wedneday afternoon by my oncologist. It is now a week later and am still here in hospital.  Yes, I spent Christmas in hospital.  And it’s not nearly as much fun as…

View original post 582 more words

 
2 Comments

Posted by on December 29, 2016 in Blogging, Personal anecdote

 

Tags: , , ,

So I married a superhero…

By now most of you know that my wife, Rhonda, is American, but what you may not know is that she’s also a superhero.

She is Spoon Woman.

When I got to know Rhonda, over five years ago now, she was just another American I could playfully wind up on Facebook. She was introduced to me by a mutual acquaintance and we soon became good friends, finding common ground in politics, music and literature, amongst other things. 
Even more amazingly, she shared my sense of humour and found my first forays into the writing entertaining, saying nice things about blog posts I sent her and generally coming across as one of the more sane and well-balanced Americans that I’d met, during my initial exploration of the internet in general and Facebook in particular.

She also told me she had fibromyalgia.

Ok, I’m guessing that if you know as much about fibromyalgia now as I did then, you’re probably reaching for a dictionary, or more likely opening a new window so you can Google it. So let me save you the trouble.

Have you ever pulled a muscle, or had cramp? 

Of course you have, everyone has had those “Uh-oh!” moments, the ones that result in you suddenly hopping round the bedroom at two in the morning, swearing your head off and trying to straighten your toes. Or that horrible sensation in your back when you try lifting something just that fraction too heavy and realise too late that you’re going to be wincing every time you bend over or get up from a chair for the next week.

Well, imagine that feeling, but all over your body.

All the time.

You can’t, can you? You literally cannot imagine it, because your brain quite rightly won’t allow you to synthesize that experience, any more than you can really remember just how bad toothache is. There is a failsafe in your brain which stops you experiencing pain, except when it is received as the kind of emergency warning signal that it’s designed to be.

If you put your hand in a fire, your brain tells your hand that it’s in pain, because that’s the quickest and most effective way to get the idiot who put it there to take it out.

Except that isn’t quite right. What’s actually happening is the nerves in your skin are telling your brain that your hand is burning and your brain, in reply, is telling your hand that it’s in pain.

But what happens if your nerves tell your brain that your hand is burning, even when there is no fire? What happens when your nerves tell your brain that your whole body is burning?

Put simply, Fibromyalgia (or “fibro” for short) does basically that; it causes neural transmitters to constantly send false positive pain signals to your brain, resulting in permanent, chronic and sometimes seriously debilitating pain, everywhere at once, all the time. The very idea of it is terrifying to me.

When Rhonda first casually mentioned her condition to me, during a chat on Facebook,  I didn’t quite know how to take it. I mean, here was a woman who looked after her daughter on her own and ran a special needs residential care home and seemed to work eighteen hour days, almost every day; that didn’t seem like someone who was in constant pain to me.

Maybe, I thought, you can just have “mild” fibro, perhaps it wasn’t all that serious after all. But that only went to show how little I knew of Spoon Woman’s abilities.

Rhonda once told me; “There are three ways fibro can affect you; you can let it take over your life, just lay in bed and give up; you can moderate your lifestyle to alleviate the impact it has on you; or you can just get on with it. I decided that I was going to just get on with it and I wasn’t going to let it affect my life.”

I was awed by her attitude at the time, having never met her in person and only having known her a short while, but I just accepted it and thought no more about it.

Fast forward a few years, she and Audrey are here in the UK, we’re married and Rhonda is working full time at the local chip shop. A dream come true.

Except that isn’t quite right. Dreams-come-true don’t usually feature constant pain, at least mine never have.

You’d never know to look at her, that Rhonda was anything other than the perfect loving wife and doting mother. She cooks, she cleans, she does laundry like there’s no tomorrow, anyone would think she was addicted to housework. You’d never know she’s in discomfort, that her myofascial tissue is screaming blue murder and her skin itches so badly she wants to scratch it off. You’d never know the muscles in her back are locked into solid knots, so bad she has to lie on a deep tissue massage roller in the evening to release the pain, or that she has hypersensitive pressure points on her skin that can deliver bolts of agony if touched.

You’d never know, because she is Spoon Woman and she knows how to best use her spoon supply 

When I was going through one of my regular fibro Q+A sessions with her the other day, Rhonda asked me if I’d ever heard the spoon analogy. Funnily enough, I hadn’t.

Imagine you have a finite supply of spoons and you need to “spend” a spoon in order to have the energy to do everyday activities: 

Get out of bed – one spoon. 

Take a shower – one spoon. 

Get dressed – one spoon.

Get the kids off to school – one spoon.

Drive to work – two spoons. 

Find somewhere to park – one spoon, etc etc…

The secret is, to portion out your supply throughout the day, so that you don’t find yourself out of spoons when you still have stuff you need to do. And, like the energy boost tokens you pick up in video games, extra spoons may be obtained through napping.

Naps are sacrosanct in our house, I’ve learned to respect the power of The Nap. And I collect spoons, too, in my way. 

If I see laundry that needs doing, or if I can take Audrey out and leave Rhonda to nap in peace, if I have time to do the housework before she gets home from work and insists on getting the vacuum cleaner out, then that’s one more spoon I’ve saved for her, so we can enjoy the times we have when we’re all here together.

I’m still awed by her, my superhero wife, now more than ever, as I learn more about what she has to deal with, every hour of every day. Because, like all of the other, secret and silent superheroes with “invisible” illnesses, to look at her, you’d never know.

{To read about the origin of Christine Miserandino’s  Spoon Theory in full, GO TO THIS LINK}

 
27 Comments

Posted by on December 2, 2016 in aardvark, Blogging, Personal anecdote

 

Tags: , , ,

Reblog: On Top of the World ….Oh wait

Lanthie continued with her treatment this week, so please pop over and give her some support…

Lump, what lump?

So here I am, 7 terminator sessions in and 2 Chemo sessions.

The first Chemo session went fairly well.  No harsh side effects.  A little nausea. A little tired.  But I was still able to function.  I was eating like a horse – couldnt eat enough.  2 Breakfasts being the norm.

I sat in the Oncologists’s room just before my second session telling her how great I feel.  I was on top of the world.  Is this all it was about I asked.  I was told that the chemo wasnt too bad and it wouldnt get too much worse.  I felt quite upbeat about it all and finally was finding some strength to deal with it all.

Then I had my second session.

Realised at my session that I had lost alomost 3kg’s in the week.  Not that I’m complaning.  Losing weight while eating like a pig – what could…

View original post 211 more words

 
Leave a comment

Posted by on November 20, 2016 in Blogging, Personal anecdote

 

Tags: , , ,

Stream of consciousness Sunday (1)…

You’ll never guess what; I’ve got a couple of days off work this coming week, so I’m merrily procrastinating today and I shall provide you with your next fix of The Accumulator tomorrow, in a SoCM post. 

But Linda G Hill left us a prompt, so it’s only fair I should put it to some use;

” “mem.” Choose a word or words with the letters “mem” in that order and run with it. ” 
Well, today I have been writing the cover blurb for my upcoming novel; a lot more difficult than I thought to keep it concise, I had to remember I wasn’t writing a story.

I also went to see tributes being paid to our fallen servicemen and women in the Remembrance Sunday parade at the local war memorial, where I captured some images to use for tomorrow’s Cosmic Photo Challenge

…followed by a pre-lunch stroll (or scoot) with the family in the unexpectedly pleasant autumn sunshine…

…and finally, I helped Audrey put the finishing touches to the project she’s been slowly working on since my niece gave her an art kit for her birthday; a papier mache dragon that is now decorated with a layer of appliqué paper, with a top coat of clear glitter paint:

All in all, a very fine way to spend a November Sunday.

I’ll see you tomorrow for part two of this omnibus edition of SoCS, enjoy the rest of your weekend and I’ll leave you with Pink Floyd and their tribute to the fallen:

Pingback to Linda G Hill.

 

Tags: , , , , ,

Reblog: The Final Countdown

Please take a moment to click over to Lanthie’s blog and give her some love on the eve of her first treatment for throat cancer.
Thank you.

Lump, what lump?

My treatment starts tomorrow.  Still can’t believe I have cancer!

I’ve had to look in the mirror a few times and actually tell myself I have it.

Why!  Why me!  How did I get it?  I can ask a thousand questions but none of them will help.  So reality sets in.   And I have to deal with it.

I have my special cream ready  R1 and R2.  R1 I apply directly after the radiation treatment each day – it is a cooling gel.  I let that soak in for 20 minutes then I apply R2- a sort of moisturising cream which I apply a few times a day.

r1r2-cream

My first radiation treatment was supposed to start at 7.10am tomorrow and the chemo treatment at 9.  I received a call from the scheduling lady today asking for the radiation treatment to be delayed to 3.15pm.  So I have resheduled the…

View original post 134 more words

 
 

Tags: , , ,

Stream of consciousness Sunday: It’s been a long week…

This week I’m wimping out on SoCS, (although even that ended up being a lie, once I began mucking about) mainly because it really has been a long slog this week and I only get one day, Sunday, when neither Rhonda or I are working. But Linda G Hill left a prompt I couldn’t pass up;

” “novel.” Use it any way you’d like. ” 

Oh, alright then…

Lazy weekend.

It was a gorgeous morning, so I couldn’t resist going out into the Devon countryside to take some photos to use in Monday’s Black and white landscape edition of K’lee and Dale’s Cosmic Photo Challenge.

Here are a few colour shots from my journey, to pique your interest for tomorrow.

Here’s a gif of the view from the hills overlooking the River Taw valley, where I took these photos. (Please excuse the shaky camerawork, that was me tripping over a tree root) 

It was also bonfire night this weekend and for those of you who aren’t aware of what that means for us in the UK, let me quote from a post I wrote a few years ago, (yeah, I know, not in the least bit stream of consciousness, but it did just occur to me, so I’m going to allow myself to use it, ok?) so, should you be interested;

It is the dawn of the 17th century.

In continental Europe, the Eighty Years War rages.

In the old low countries that would become the Netherlands, the Catholic Spanish are fighting the Protestant Dutch, aided by mercenaries and zealots from far and wide, including a man known variously as John Johnson, Guido Foukes, and Guy Fawkes.

During his time on the campaign Fawkes met Thomas Wintour, a fellow anti-royalist who introduced him to Robert Catesby, the man who would lead the conspiracy that would become known as The Gunpowder Plot.

*****

Rewind a further 700 years.

The dingy recesses of a kitchen in 10th century China:

A cook is making a spicy curing mix for half of the pig his master has acquired for winter storage.

In the gloom he reaches for black peppercorns to add to the saltpetre he has already got in his grinder, little knowing that what he has in fact added is ground charcoal, used to prime the ovens.

Not only that, he also erroneously adds sulphur in the place of yellow turmeric.
After starting to rub the mixture into the pork, he realises his mistake too late and has to dispose of the spoiled meat, already fearful of the punishment to come.
However, when he throws the carcass on the fire, thinking to tell his master a tale of a cooking accident, he notices the coating he had applied burning with strangely coloured flames and giving off loud cracking and popping noises.

Knowing a good escape route when he saw it, he hurried to his master and told him of this mysterious discovery.

Experiments followed, packing the sulphurous black powder into hollow bamboo shoots and igniting it, the destruction achieved seemingly disproportionate to the tiny volume of mixture used.
The rest is history.

Or possibly gastronomy.

*****

Fast forward to England in 1605.

By now Catesby had persuaded Fawkes and eleven other co- conspirators to take part in his audacious plan to assassinate King James I.

He had gained access to the undercroft of the House of Lords, where he and his cohorts stashed some two and a half thousand kilogrammes of gunpowder. Enough, by recent calculations, to cause total devastation to anything within a 500 metre radius of the blast.
Of course the plot was foiled at the last, the King’s men tipped off by an anonymous letter. But it is often forgotten, in our haste to cast a good anti-hero in our folk legends, that John/Guy/Guido only played a minor part in proceedings, merely guarding the cache of explosives and therfore being the only one caught red-handed.


He gave the rest of them up under what would nowadays probably be called “enhanced interrogation”, but cheated the full weight of justice – he was to have been hanged, drawn and quartered – by jumping from the scaffold and breaking his neck before sentence could be carried out.

*****

Now, back in the present day.

We still celebrate the burning to death of a man who actually took his own life under the very noses of his executioners.

And thanks to Henry VII choosing the new fangled fireworks (oh, if that long-dead Chinese chef knew what he’d started) as the climax to his wedding festivities in 1486, immediately making them de rigueur with the celebrating upper classes and soon with anyone else who could mix the easily-accessible ingredients, we now fire all manner of alarmingly powerful ordinance into the night sky, never knowing quite where it will land.

Well we have a tiny back garden, which is overhung by a large oak tree, so we were never going to have an aerial spectacular, but Audrey and I still had a mini display of our own, with a combo firework and some sparklers.

Here are some pictures and another bizarre little gif.

And as for Linda’s prompt, well; in case you missed it, I have a novel coming out soon and if you click the lovely bespoke artwork below, you can find out more.

There, that wasn’t too blatant, was it?

For more photographic loveliness, tune in here tomorrow for the Cosmic Photo Challenge and over on Photo Sans Frontiers for more on my trip up to the wind turbines.

The Accumulator returns next week, honest.
**********

#SoCS

Pingback to Linda G Hill.

 

Tags: , , , , , , , , ,

 
The Lessons

that time forgot to teach

SOZ SATIRE

The Best of British Bullshit

Step-Parent's Sanctuary

The Stories Behind those (not so) Perfect Family Photos

Ellenbest24

words and scribble.

sloppybuddhist

hedy bach photography mixed stories and music

Isabella Morgan

Opinions not otherwise specified

A Life in Transition

Poetry & Fiction

The Bee Writes...

.... don't expect anything...not even the unexpected...

Author Kyle Perkins

The latest and greatest of my documented daydreams

Luca Sartoni

Protector of Asynchronicity at Automattic

ONE MORE SHOT PLEASE

Immortalize Every Moment. Express With Panache.

Pages That Rustle

The journey from words to stories.

trickyemotions

For your mind only!

Waruni Anuruddhika

Film and photography

An Artist's Path

A space for creative seekers.

3nions

Learn WordPress & SEO from the beginning...

Tyler Charles Austen

Foul mouthed, Queer and Angry

balloonfacetrace

The facepainting and balloon twisting lady

Jamaica Ponder

...only a little bit famous

Art by Rob Goldstein

There is no common truth

Kristin King Author

True Story...

bluchickenninja

graphic designer // bibliophile // geek

thegirlwhofearoblivion

To Share, To Connect, To Create, To Inspire.

unbolt me

the literary asylum

swo8

Music means something

Broken Castles

Shattered long ago...

Joshi Daniel Photography

Images of People Photoblog

iamthemilk

Every day I'm jugglin'.

The Write Project

"The answer is to write." - Richard Rhodes

b e t u n a d a

I'm interested in THE GLUE BETWEEN THINGS. "Back on planet URTH" i search for and study desert wombats and inukThingies (they're like inukshuks) while rambling in the high desert of western Colorawdough.

Seabornen

enthusiast photography

BizChair Square

Stop Yearning, Start Earning

Sass and Sauce

A dash of sass, a dollop of sauce!

The Dissatis Faction

An immersive curation of culture for artists and wanderers of the web

A Whispered Wind

The Works of Lori Carlson

A Momma's View

My thoughts about homeschooling, health and fitness, being an expat, kids and just life in general. My personal Lifestyle Blog!

Three's a Herd

Mothering a preemie, a princess, and a work-in-progress

Thoughts by Mello-Elo

Books, Poems, Stories...and a cup of coffee, or two!

kelzbelzphotography

My journey - The good, bad and the ugly

%d bloggers like this: